Monday, 3 May 2010


Steroidnightus - yes that's right I'm suffering from steroidnightus even though I can't find it listed in any medical dictionary. As I mentioned in the post 'Mrs Newman' I woke up on the day of my daughter's wedding with a chest infection which, like a lot of people living with bronchiectasis is not an uncommon occurrence. To clear these infections I not only need antibiotics but also a course of oral steroids to dampen the inflammation in my lungs and let them clear.

Now oral steroids, even though necessary for me, are not something to be taken lightly because they are powerful drugs that can have all sorts of odd side effects. The ones that cause me most problems are thinning of the skin, a particular problem as I have always cut easily, and disrupted sleep; in particular being awake from about 3 am to 6 am. Whenever I'm on steroids for more than about 5 days I find I can't sleep at night and I can't stay awake during the day. I listen to a lot of radio via an earpiece (so as to not disturb my wife) during the night and then spend the next day walking round like a zombie. I have tried taking the steroids in the evening and the morning, sleeping in the day, not sleeping in the day, reading till I fall asleep etc but none of it makes any difference. When I'm on steroids I have trouble sleeping.

Now oddly I was never warned about this when I first went on steroids or have I noticed it in the enclosed patient information leaflets (although I haven't bothered reading one for years - all those listed sided effects are enough to make you ill) but I only found out in conversation with my GP. S I'm posting this just in case someone else thinks they are going crazy when taking oral steroids.

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